I have been working on my final project for a while. During this time I have received wonderful support. Nurses from the heart failure clinic will be reviewing and commenting on the site- the only problem is that one is not able to sign in to NING. I phoned her and went over how to sign in to the platform over the phone but it did not work. I was thinking that maybe it would have to do with the firewall at her place of employment?? She is going to try to access the NING site from home to see if that works. Has anyone else had this experience? If so what have you done to correct this? One other participant has signed on and they do work at the same place. Any suggestions would be greatly appreciated! Thanks in advance…
As my final project is developing a site where patients, family members, friends and health care providers could come together to discuss issues, questions, treatments about heart failure as well as a place where patients and family members could share stories if they wish, I focused the health related information to someone newly diagnosed with heart failure. Topics included describing what heart failure is, managing symptoms, how to track symptoms, diet considerations (low sodium/salt), taking medications, emotional health of living with a chronic condition. I will also include topics such as losing weight, weight loss procedures, advanced health care directives. If you knew someone with heart failure- what information would like to know?
Based on research, signs and symptoms was ranked the most important topic for learning followed by prognosis, risk factors, medications, general information, diet, psychological factors and activity (Boyde et al., 2009b). These findings were supported by Nahm et al. (2008) who found the heart failure patients wanted to have up-to-date information on research findings, medications and laboratory tests, rather than general information about heart failure. Patients liked to have immediate access to information in order to verify if they are still following the recommendations as prescribed (Boyde et al., 2009a) and found it useful to continue web-based communication over long periods (Delgado et al., 2003). Caregivers want equal access to web-based information to help their loved ones and to provide better care (Nahm et al., 2008; Piette et al., 2008). When given access the Web-based applications, caregivers reported that the program was helpful in providing assistance and additional information about heart failure (Piette et al., 2008).
Boyde, M., Tuckett, A., Peters, R., Thompson, D., Turner, C., & Stewart, S. (2009). Learning for heart failure patient (The L-HF patient study). Journal of Clinical Nursing, 18, 2030-2039. doi:10.1111/j.1365-2702.2008.02716.x
Boyde, M., Tuckett, A., Peters, R., Thompson, D., Turner, C., & Stewart, S. (2009). Learning style and learning needs of heart failure patients (The Need2Know-HF patient study). European Journal of Cardiovascular Nursing, 8, 316-322. doi:10.1016/j.ejcnurse.2009.05.003
Delgado, D., Costigan, J., Wu, R., & Ross, H. J. (2003). An interactive Internet site for the management of patients with congestive heart failure. Canadian Journal of Cardiology, 19(12), 1381-1385.
Heart failure. (n.d.). In heart and stroke foundation. Retrieved September 29, 2010, from the World Wide Web: http://www.heartandstroke.com
Heo, S., Moser, D. K., Lennie, T. A., Riegel, B., Chung, M. L. (2008). Gender differences in and factors related to self-care behaviors: A cross-sectional, correlational study of patients with heart failure. International Journal of Nursing Studies, 45, 1807-1815. doi:10.1016/j.ijnurstu.2008.05.008
Munhall, P. L. (2007). Nursing research: A qualitative perspective. Sudbury, MA: Jones and Bartlett Publishers.
Nahm, E., Blum, K., Scharf, B., Friedmann, E., Thomas, S., Jones, D., & Gottlieb, S. S. (2008). Exploration of patients’ readiness for an eHealth management program for chronic heart failure: A preliminary study. Journal of Cardiovascular Nursing, 23(6), 463-470.
Piette, J. D., Gregor, M. Share, D., Heisler, M., Bernstein, S. J., Koelling, T., & Chan, P. (2008). Improving heart failure self-management support by actively engaging out-of-home caregivers: Results of a feasibility study. Congestive Heart Failure, January February, 12-18.
Strömberg, A., Dahlström, U., & Fridlund, B. (2006). Computer-based education for patients with chronic heart failure: A randomised, controlled, multicentre trial of the effects on knowledge, compliance and quality of life. Patient Education and Counseling, 64, 128-135. doi:10.1016/j.pec.2005.12.007
Westlake, C., Evangelista, L. S., Strömberg, A., Ter-Galstanyan, A., Vazirani, S., & Dracup, K. (2007). Evaluation of a web-based education and counseling pilot program for older heart failure patients. Progress in Cardiovascular Nursing, Winter, 20-26.