For my final project, I am interested in using NING to develop a community for patients with heart failure and their support persons. As a Registered Nurse, I see patients readmitted with a diagnosis of exacerbation of heart failure on a regular basis. We are fortunate in Saskatchewan to have 2 heart failure clinics, one in Regina and another in Saskatoon however at the present time not everyone has equal access to the services and the majority of patients only receive information from their doctor. Web-based interventions have been shown to be effective for this patient population as they provide education, social support,increased knowledge and up to date information. In studies done to date, the patients and caregivers only have access to the information for short periods of time. Thus I would like to develop a site where patients and caregivers can receive current information and support from others within a community. I will be developing this site based upon current guidelines but will not be able to have patients or caregivers access this site at this time. In order for patients and caregivers to access the site, I will need to obtain Ethics approval from several sites which will take longer than my time in the course. However I hope to have feedback from Registered Nurses and others working with heart failure patients. I will also reflect on my journey creating the site so please follow me as I begin…
Boyde, M., Tuckett, A., Peters, R., Thompson, D., Turner, C., & Stewart, S. (2009). Learning for heart failure patient (The L-HF patient study). Journal of Clinical Nursing, 18, 2030-2039. doi:10.1111/j.1365-2702.2008.02716.x
Boyde, M., Tuckett, A., Peters, R., Thompson, D., Turner, C., & Stewart, S. (2009). Learning style and learning needs of heart failure patients (The Need2Know-HF patient study). European Journal of Cardiovascular Nursing, 8, 316-322. doi:10.1016/j.ejcnurse.2009.05.003
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Nahm, E., Blum, K., Scharf, B., Friedmann, E., Thomas, S., Jones, D., & Gottlieb, S. S. (2008). Exploration of patients’ readiness for an eHealth management program for chronic heart failure: A preliminary study. Journal of Cardiovascular Nursing, 23(6), 463-470.
Piette, J. D., Gregor, M. Share, D., Heisler, M., Bernstein, S. J., Koelling, T., & Chan, P. (2008). Improving heart failure self-management support by actively engaging out-of-home caregivers: Results of a feasibility study. Congestive Heart Failure, January February, 12-18.
Strömberg, A., Dahlström, U., & Fridlund, B. (2006). Computer-based education for patients with chronic heart failure: A randomised, controlled, multicentre trial of the effects on knowledge, compliance and quality of life. Patient Education and Counseling, 64, 128-135. doi:10.1016/j.pec.2005.12.007
Westlake, C., Evangelista, L. S., Strömberg, A., Ter-Galstanyan, A., Vazirani, S., & Dracup, K. (2007). Evaluation of a web-based education and counseling pilot program for older heart failure patients. Progress in Cardiovascular Nursing, Winter, 20-26.