As I began watching the you tube videos describing what is a MOOC (massive open online course), I became very excited with its potential as not only am I participating in such a course (eci831) but I will be able to connect and collaborate with others who share similar interests. I am excited to participate in a course and learn from the experts in the field as I am coming into this course with some basic knowledge of teaching and learning from a nursing perspective. As I further explored the use of a massive open online course, I began to consider how I could use this for patient education purposes. Then questions began to arise:
Would strangers with no other connection other than a medical diagnosis join a course that is open, participatory, distributed with a focus on developing connections?
What would be the ethical and legal implications considering the health information protection act?
Would such a course meet the needs of the patients and family members?
As I must ensure the patient’s privacy, it would be hard to encourage them to join a course with the focus on developing a networked community of learners with similar interests, but then isn’t that similar to the mandates of social support groups? To maintain privacy, everyone who registers could have an alias, but would this impact how they connect and collaborate on the site? In a network, the anonymous patient would still be able to post information, reflect on how the diagnosis has impacted their life and the life of their family. The anonymous patient would be to support other members of the community. As with any other group, there would still be members that would congregate together due to similar likes, experiences and interests. With many disease states, the condition does not discriminate according to age. Thus people of all ages could potentially join the course. Would such a course be able to respond to the needs of all patients with a variety of backgrounds and ages?
My thoughts also turn to the use of Twitter or Facebook for patient education. Would patients use Facebook to join a group discussing a specific disease state? Again this brings up issues related to privacy. I know that many patients, both young and old, are accessing the Internet to find out more about a medical condition, treatment or medication. Sites that they are accessing may not be trustworthy but they are still using the Internet and believing the information they read despite what a health professional may tell them. Would Twitter be more a more effective appraoch? A benefit includes connecting to a large number of people with the latest advances, current reports or websites linked for reference. You could post information on the site, people could ask questions but would you really develop that trust and relationship with the patient? As Michael Wesch stated
the medium shapes the message, the medium shapes the conversation, the medium shapes the possibilities for community, for identity construction and ultimately for self awareness
When I post something on the Internet, I do not know if anybody will read what I say, but in case somebody does read the post, will the use of social media negatively impact the nurse-patient relationship?Advertisements